All the Things

Flippant comments can some times unleash a whole pile of emotions the speaker could never intend. No fault of anyone really but when you’re the one piled under the emotions it’s hard to get perspective.

I would love to travel. Anywhere. Everywhere. It seems like everyone around me is going somewhere. Visiting friends. Visiting family. Sightseeing. You name it.

I admit to envy. A lot of envy.

I have my two weeks of vacation but I’m hesitant to actually use it in case I need time off to interview or if I’m lucky enough to actually quit this year it will be carved out of my last pay which at this point I can ill afford.

Travelling is a luxury some people take for granted. I’d love to book a trip to Paris but on top of the money I don’t have because my health expenses suck up a lot of my formerly disposable income, there’s my health. I worry about taking a trip or being away from my apartment too long. Everything I need in case of a flare is here: drugs, heating pads, ice packs, my bed. Sure most of those things exist anywhere I want to go but there’s more. What if I don’t have the energy to do the things I want to? Or see the places or people I want to see? What if I’m having a flare and people don’t understand? What if I get hurt while I’m away? All of these questions keep me close to home.

Last year The Gay BF and I went to Boston for 4 days and that’s as far as I’ve been since I’ve been diagnosed and I almost didn’t want to go. I was scared to be away from my comfort zone. I was scared I’d just be a drag. (And even though he’ll never admit it I don’t think daily naps where *really* what he wanted to do every day).

So real travel plans are on hold for me right now. I just can’t bring myself to go.

***

I saw the light at the end of the tunnel. I interviewed and was offered another job. I had practically moved back home and reinvented my life when I got the call – the company had changed their mind about what they were looking for. Completely unrelated to me or my references.

I actually wailed on my floor that night. Just lost it. I thought I had a way out of my horrible job situation and then pouf! Gone. Back to the shit at my job.

Thankfully, I know now that my interview skills are spot on and that I’m worth at least another 8k than what I’m making now. Tangible proof to all the ranting I’ve been doing about being undervalued isn’t just hot air.

***

I switched to Cimzia almost five weeks ago now. I’ve had the first two loading doses as well as continuting with my 1CC of methotrexate. Except for loss of appetite I’ve had no negative side effects. More importantly, I have energy. Lots of energy. I’ve been social and I’ve been cleaning (scary stuff). Yes, I’ve overdone it a few time and paid for it a little but all in all this is a huge improvement. Pain levels are mild to moderate – made worse by either over doing it or the wacky Southern Ontario weather. Otherwise I have almost pain free days.

Let me repeat this:
ALMOST PAIN FREE DAYS!!!!

***

I’m also not going to kiss and tell but I am dating again. That feels good too πŸ™‚

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2 thoughts on “All the Things

  1. Sounds like you are so busy, in a lot of good painfree ways. Good luck with the interviews.
    I was so anxious about travel last time I fedexed a big box in advance

  2. I am. I hope this means things are only going to get better from here πŸ™‚

    I worry about forgetting something or having trouble with crossing the border with all the meds. I know what can happen.

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